I walked into my specialist’s office feeling like absolute garbage. I didn’t go into the office because I felt so awful, that was just an added benefit on this trip. I had gone in to go over lab results and discuss which way I was going in my “chose your own adventure” with lupus.
The fact I could walk in and when my specialist asked me how I was, and point to all the various pain points was an added bonus. He suggested I consider getting a massage for some of the pain. He said that my ears had fallen, and I was guarding myself far too much. A massage, he reasoned, might help raise my ears and put my body at ease.
Now in all truth, my ears hadn’t fallen. I was in pain. When I’m in pain, I pull my shoulders up and forward. I hunch over a bit. And frankly spending any amount of time in this position doesn’t help the pain. It may, in fact, increase the pain I feel.
Since he couldn’t a reason for not getting a massage, he called in one of his nurses and told her what he thought I needed. She in turn told me she was making arrangements for the massage with the therapist just down the hall. In other words, there was no way to avoid it.
So I went. And the therapist tried to massage out my painful muscles, but she couldn’t. Because I couldn’t relax. Because of the pain I was already in. So she opted to use a TENS machine to try to help the muscles relax. While I sat there with this lovely pit of electronic equipment pulsing my tight muscles, the therapist went to talk with the specialist.
When she came back, she told me that there wasn’t much more she could do at this time. She suggested Epsom salts in bath water to try to ease some of the pain.
This is not exactly the path I chose in my adventure with lupus, but sometimes you rely on a team member who may or may not be right. We will see where we go next!