I still remember, clearly, when I deceived my diagnosis of lupus. The sun was out, birds were flying outside my doctor’s office and my doctor’s face bore the hallmarks of delivering unpleasant news.
He told me he was sorry to have to tell me I had lupus. He was quick to assure me it wasn’t a death sentence, but was going to change my life going forward. He also said it wouldn’t necessarily be easy, but it wouldn’t always be hard. He spelled out how the disease can affect the body and was very clear that remission could happen.
Even with my own unease at this, I realized that this wasn’t something I would face alone. It struck me then, as it does now, that there is the word “us” in lupus. Us, as in a team, a group or not alone.
There is something comforting in knowing that you never face something completely alone. Even when you think you just want to handle it all on your own.
Over the years doctors have come and gone in my life. Some have stayed, the ones who are part of my team. My lupus team. The ones who remind me of the “us” in lupus. The ones who assure me I’m not alone.
There are other people who fill in the “us” too. Friends, loved ones and support people. So each of us who have lupus need to remember there is an “us”, even in the darkest of moments. We are never alone. Because with lupus there is always an “us”. You just have to look for it!