I’ve been debating writing this post. I’ve struggled with if it’s the right thing to post or not. And in the end, after the mental debate was done, I decided I would post it, because chances are I’m not the only person who has experienced something similar. You see now and then we encounter ignorance in our lives. Most of the time we just get past it, but now and then it strikes too close to home.
While out and about today, picking up something a little special for myself I encountered that form of ignorance that stopped me. Actually, friends, it left me a bit hurt and later a bit teary eyed. Which yes is silly, but it’s also just a fact of being human. And no I don’t expect everyone in the world to be versed in lupus, that would be asking too much and frankly few people get it unless they or a loved one has it.
And yes it is a “horrible autoimmune illness” as the man in the store was explaining that he was so relieved that his wife had cancer rather than a “horrible autoimmune illness like lupus which is life ending”. It isn’t, life ending. Lupus I mean. You still have a life, or at least I have a life with it. Sure some things have changed and altered by this illness, but it isn’t like I’m just going through the motions either. And I made a point of letting the couple know that life, does in fact, happen with lupus.
It was after, when I was explaining what had happened to a friend that the tears came. Before it was just anger. Neither is exactly appropriate. At least not when it comes to addressing a lack of education and I know better. But I’m also a human. Who has lupus and at times struggles with the downs of the illness. This time I got caught with the ignorance on a down point.
Sure living with lupus is a struggle at times, but not always. And sure there are down moments, but the same can be said for people who are perfectly healthy. And life, my friends, is what you make of it. You can embrace it with arms wide open or you can drift along and see where it takes you, merely observing and getting your toes wet now and then.