An interesting thing happens when you get a diagnosis of a chronic illness. Well actually there are several interesting things that happen, from the whole grief cycle to sense of relief and motivation. But the interesting thing I’m referring to is the way some of us grasp onto that diagnosis as if it’s a life line.
We hold it tight and close to us and we treat it like a life-preserver. Sure the diagnosis is validation that there was something wrong all along. It also points forward to a means of treatment which is always a spark or flame of hope. But it’s easy to forget to take off that life-preserver and it just becomes a part of us.
We literally take on the identity of the illness into our own identity. For example instead of being a person who happens to have lupus, I could have easily taken lupus into who I was and basically hyphenated it to my name. The longer you wear that life-preserver the more it simply becomes part of your daily attire. Lupus makes me tired, therefore I am tired all the time. Lupus means joint pain and since I am lupus I have joint pain. Everything you do, at this point, is done with your illness first and foremost in front. For example, when invited to an outing, I would have to consider sun exposure, stairs and so on. If those were present or likely to be present, I would have to decline the invitation.
Here’s the thing dear friends. Yes I have lupus, but it doesn’t define me. Sure it limits me sometimes, but I also choose to limit how much I let it limit what I am going to do. Instead if I feel okay and I want to do something, I do. I may or may not have a flare issue. If I feel awful, I weigh out how much lupus will cost me and if it costs too much, I set it aside the thing for another day.
I certainly don’t introduce myself with lupus. If someone says “Hi I’m (insert name here)” I will respond in kind. I do not add lupus. I don’t address lupus unless it has to be addressed. Because I am not lupus. And if I can offer you one thing, it’s this: not becoming your illness is the most liberating thing you can do when you have a chronic illness. After all, you are still an amazing person with plenty of gifts and talents to share.