Evacuating Lupus

Today was leg day.  More specifically it was stair day.  Twenty-four flights of stairs, each flight consisting of twenty-five steps.  This cardio work out was followed by a cool down of consisting of a “short walk” of roughly 1000 steps.  And then a rest period out in the sun.  And then after I rested, we did the whole thing in reverse.

Not because I wanted to as per say.  And no I do not have a trainer who forced me to do this.   No dear friends this whole workout was brought to me courtesy of someone pulling a fire alarm in a building I was visiting. A specialist’s office in a high-rise.  As a matter of fact this happened twice during my visit.

While I understand and appreciate the cause for concern and safety, I really wasn’t up for all that.  Not after the day I had been having nor the reason I was visiting the specialist for.  I confess there was a small part of me that had briefly wondered if it wouldn’t be better to let myself become overcome by smoke and just stay where I was.

After my appointment I went home and rested. To be honest I all am because all of that was too much.  In fact it was so much too much I still haven’t ceased to feel shaky and weak.  Sometimes this is what life with lupus looks like.  Sometimes a chronic illness isn’t really taken into account with safety or evacuation plans.  And while yes at least I was safe, the reality is I am going to be dealing its fallout for days to come.


14 thoughts on “Evacuating Lupus

  1. Omg what an inconvenience. For it to happen once, okay. But twice in one visit? I know you just had to be burnt out. I know I would have. I am so sorry. Sending spoons your way. Hope you’re much better today 🙂

  2. Oh wow! That is a lot of walking all because of a fire alarm going off twice! I really hope you’re okay now. Stay strong 💪

  3. That is true. And it works as well

  4. Even three flights of stairs in the building where I work is enough to target my knee and ankle tendons with lupus flare and inflammation. ADA requires accommodating people who need help going down stairs in an emergency. After a fire drill, if no one helps me (but they do) I can hardly walk the next day, this is why able bodied coworkers are assigned to help me during evacuation drills. Your doctor’s staff should have been willing to assist you and should have known you were not up to using the stairs. In many evacuation plans, handicapped persons on upper floors are supposed to go to the stairwell and wait for roof evacuation by helicopter, and people who work in the building are supposed to know what the evacuation plan is. A medical office building should be ready for that!

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