Learning Always Learning With Lupus

One of the lessons I learned after spending so many years in school is that just when you think you fully understand a subject, you discover some obscure fact that leads you down another rabbit hole of learning!

Lupus also ensures I am reminded of this lesson, sometimes by making me juggle symptoms and specialists.  And other times just when I think I understand my relationship with lupus something new comes along and forces me to reflect and reassess.

Today I was reminded of this lesson again, this time from an insurance company that decided not to cover my medical claim because the medication I was prescribed is not listed as being used for lupus.  My doctor prescribed the medication as an off-label means of managing my lupus symptoms.  The insurance company decided that I don’t deserve to have this medication covered as my doctor clearly doesn’t know how to use the medication as it was meant to be used.

Although countless people have lupus, after all it is the leading autoimmune illness, we still do not have a lot choices or options when it comes to medical treatment.  There is still a great deal to learn about lupus, which in turn leads to discovering new means of managing and possibly curing this illness.  Let’s never stop learning, let’s never give up until we have the answers and a cure!

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